A Tragic Loss.
One week after her 26th birthday Kat lost her mom to Cardiac Amyloidosis, a rare disorder caused by deposits of an abnormal protein (amyloid) in the heart tissue. These deposits make it hard for the heart to work properly. Cardiac Amyloidosis can be treated, but without treatment, Cardiac Amyloidosis progresses rapidly and aggressively.
In order for Cardiac Amyloidosis to be treated, it must first be diagnosed by a doctor. Due to its rarity, Cardiac Amyloidosis is unknown to many doctors and to most of the public. Therefore, the symptoms of Cardiac Amyloidosis are often mis-diagnosed by doctors.
Since 2014, Kat has been on a mission to raise awareness of Cardiac Amyloidosis in the public and the medical community. Her wish is that no other family will suffer the unnecessary loss that her family did.
Please hear Kat tell her heartrending story in this free, 40 minute interview by her dear friend, Ben Kissel. Kat‘s wonderful, straightforward candidness in relating her deeply personal, firsthand experiences can help anyone who will lose or has lost a loved one.
How Can You Help?
Help Kat raise awareness by learning more about Cardiac Amyloidosis and its symptoms. Perhaps you can save a family from unnecessary loss. This link to the Brigham and Women’s Hospital Cardiac Amyloidosis Program is a great place to start.
Donate to Brigham and Women’s Hospital to help fund Cardiac Amyloidosis research. Any amount will help, and your tax-deductible donation will help researchers develop a better understanding of Cardiac Amyloidosis and improve care for patients who have the disease. Just click this link to contribute on their “Your gift makes a difference” webpage. You can direct your gift to Cardiac Amyloidosis research by clearing the text box beneath “Other” in the Gift information section and typing in “Cardiac Amyloidosis.“ And although Kat receives no financial benefit, it would mean a lot to her if you made your donation in tribute to her mom, Anne Marie Ochab Timpf.
Thank you so much for your help.